The European Commission’s expert group on Rare Diseases met on13 November 2015 to discuss the current status of the implementation of Cross-Border Healthcare
In its recent meeting, the EC expert group on Rare Diseases discussed the current status of the implementation of Cross-Border Healthcare, the role of European Reference Networks and crucially, the issue of genetic testing across Member States. The group now to support the implementation of such policy instruments and facilitate the process of cross-border genetic testing (CBGT) of rare diseases.
Healthcare remains an issue which falls firmly within the scope of EU competence and so the group restricts itself to transparency and information sharing. Nonetheless this remains an important step towards greater sharing of genetic information in the treatment of rare diseases.
More information about this meeting can be found here.